To celebrate Father's Day, Shaun just wanted to be with his family, all together. So we went out to eat at Red Robin, one of our favorite family friendly restaurants because they have a great kids menu, freckled lemonade, balloons, and a loud atmosphere so it doesn't bother anyone if your kid has a temper tantrum. Not that my kids would ever through a fit or anything! Instead on this occassion they were just wrestling with one another in their booth, that's all! :)
Well, there's a reason we haven't gone out to eat before this and that's because I'm afraid it's going to be a disaster ~ there won't be room for Gabe in the restaurant, that something will happen and we'll end up having to bag or suction him, we won't be able to handle the girls at the same time as Gabe, or worse than that there will be a catastrophe that we won't be able to handle. Even typing this I recognize that these fears probably don't sound as 'monumental' as they are in my head, and thankfully to this day there has never been a situation we haven't been able to handle (only by the grace and strength of God).
Unfortunately my worst fears came true, and about halfway through the yummy meal Gabe woke up and must have realized where he was, got extremely tense, which always makes his numbers go out of whack, and began an endless cycle of de-sating and trying to bag him back up. At one point Shaun insisted Gabe needed suctioning and whipped out the suction machine without any hesitation. No one even batted an eye or even heard it, thankfully. So after we suctioned him, he was good for a few minutes, but then quickly plummeted his oxygen saturation levels down (we still don't know why) and Shaun and I had to bag him up again. At that point we knew we had to leave and get out of there.

In case you ever wondered what a "bag" is...
We loaded up and quickly tried to push him out of the restaurant into the car, but Gabe still wasn't keeping his sats up. So Shaun, wanting to help Gabe and stabilize him, stopped the stroller and we just stood there, in front of the restaurant, bagging Gabe. At that point Shaun just wanted to carry Gabe to the car while bagging him and leave the ventilator behind, which was not what I had in mind! I'm a 'blend in' kind of person who doesn't like to draw attention to myself or make myself stand out. Unfortunately, with Gabe, that just doesn't happen. It's something I obviously need to work on and focus more on Gabe and his needs instead of what everyone else is thinking. Another thing Shaun later told me was that in the midst of the crisis I was making things worse by saying "This was such a bad idea... Why did we even attempt this?... We'll never do this again..." At the time I don't even realize I'm doing it, guess it's just nervous chattering.
On the bright side, next time can't possibly be much worse than that, so I guess it's only up from here.
Today we had Lisa back - YAY! - and she came with us to the pool (with Gabe) and later to a baseball game. It was Gabe's first baseball game. And he did much better. It was kind of redeeming to have a good outing with him after that horrific experience. Having Lisa there lessens my anxiety level so much. I pray that some day Shaun and I can take all 3 of our kids out somewhere without fears of de-sating, suctioning, low vent battery, or a tense little guy.
3 comments:
Rachel - ten years out and I still worry about whose looking at us, what are they thinking, and not wanting to stand out in the crowd. I just don't think that I will ever be comfortable as the parent of a child with disabilities. It doesn't mean I don't love my "special" kids to the moon and back, I just don't like being "different". I totally get how you feel and I can almost picture you talking and Shaun trying to get the situation under control. Me and Mark totally!
Next time will be better.
Love ya'
Ann
Wow, what an ordeal. I am so glad Gabe finally stabilized. I totally would have been like you in the situation while Jeremy would have been like Shaun.
How fun that you all got to go to a baseball game. I love doing that and we have yet to take Marissa to one. There is even the Sky Sox (Colorado Rockies Farm Team) stadium about a mile from our house! So glad Gabe did well at the game and you have your Lisa back. God bless her and you too!
dear rachel,
i was in tears reading your blog and feel such overwelming emotion for you as a mother. gabe is so lucky to have you.
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